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Why have you invited me to take part?
We have invited you to take part because you have had experience treating children with brain tumours. Your experiences are really important. We want to know what unwanted outcomes were important following their surgery. We are looking specifically at unwanted outcomes as a consequence of their operation rather than those associated with adjuvant treatments.
Stage 3 - Delphi Survey
We have made a list of possible unwanted outcomes of surgery.
We would like you to look at these and tell us which ones are the most important. The most important unwanted outcomes are the ones that future research will always report.
What happens after the survey?
At the end of the second survey we will analyse the results. Then we will invite a group of children/young people who have had a brain tumour, their carers, health professionals and researchers to a meeting. This meeting will be online. The purpose of the meeting will be to discuss the results and agree the final core outcome set.
It won’t be possible for everyone who completes the surveys to attend the meeting. If you would like to attend, you can tell us by answering a question at the end of survey 2. If you say you would like to take part we will send you more information about the meeting.
You can find out more about taking part in the survey in the following information sheets!
Survey Information sheet
Healthcare professionals/ researchers
If you would like to take part please fill in the following expression of interest form and we will we be in contact by email!
Expression of interest form
Survey
