Resources for children

Hello!

My name is Sandhya. I’m a doctor.

I work at a hospital called Alder Hey Children’s Hospital in Liverpool.

I am doing a project. It is to make a list of the most important changes that happen after head surgery in children.

I would like to ask for your help to do this!

What is the project about?

A project can help us solve a problem. This is so we can make things better.

Surgery can help children if they are ill. It can sometimes lead to changes that you didn’t want. You might not be able to do the same things as your friends or family. These changes are called ‘unwanted outcomes’. They can make you feel sad or angry.

We want to know how you felt after your surgery. Did any changes happen to you? Which ones were most important? We need to know this so we can make things better for other children like you. It will help us to make new treatments better.

We need to make a list of the most important changes. To do this we need to know what you think. We hope you can help us to do this!

Why have you asked me to take part?

When you were ill you had surgery. This was to make you feel better. How did you feel after it? Where there any changes?

You know what changes that happened to you that you didn’t want. You are the best person to tell us about this!

You can find out more about the project in this video!

Stage 2 – Interviews

What will happen if I take part?

If you take part you will meet with me, Sandhya, twice. We will meet online.

We would like to interview you about you or your child’s experiences after surgery. By doing this we can make sure that your views are included when deciding what outcomes are most important. The most important outcomes are the ones that future research will always report.

The first time we meet will take about 15 minutes. It will be a chance to say hello, for you to ask me any questions you have, and to check that you are happy to take part. You can have your parent or carer with you when we meet.

The second time we meet it will take a maximum of 1 hour. This time I will ask you questions about when you were ill and when you had surgery. You can also have your parent or carer with you.

Where can I find more information?

This video explains more about the interview!

The information sheets below have more details!

If you want to take part, or have any questions let your parent or carer know. They can let us know and can sign you up to take part!

Stage 3 - Survey

What will happen if I take part?

If you take part I will ask you to answer some questions. This will be in a survey.

If you have any questions we can have a meeting to answer them. It will be a chance to say hello, for you to ask me any questions you have, and to check that you are happy to take part. You can have your parent or career with you when we meet.

When you are ready to take part I will send you the questions to answer. You can answer them by yourself, or with your parent or carer. The survey will be on the computer. It will have two parts. If you have any problems I can help you.